CFC Verona News
“Fibrosi Cistica: un virtuoso esempio di sinergia tra ente pubblico e mondo del volontariato”
19 September 2026, Camera di Commercio, Verona
49th European Cystic Fibrosis Conference
3-6 June 2026 Lisbon, Portugal
9th SDS National Meeting for Families
15-16 May 2026. Hotel Kursaal, Cattolica
Test da sforzo cardiopolmonare: dalla teoria alla pratica (Focus Fibrosi Cistica)
22-23 May 2026
Commentary on the new study published by the Verona CF Center on Shwachman-Diamond Syndrome
Ataluren Boosts Blood and Pancreas Health in Shwachman-Diamond
Pomeriggi di aggiornamento in Fibrosi cistica
October – December 2025
La Fibrosi cistica: rivalutazione e consolidamento della modalità di gestione del paziente con necessità di drenaggio delle secrezioni bronchiali
14 October 2025
The WHO has added CF medicines to its list of Essential Medicines
This document now lists ETI (Kaftrio), ivacaftor (Kalydeco) and pancreatic enzymes (e.g. Creon) as essential medicines.
A first therapy for Shwachman-Diamond Syndrome: Verona Cystic Fibrosis Center at the forefront of scientific research
Ataluren improves hematopoietic and pancreatic disorders in Shwachman-Diamond syndrome patients: a compassionate program case-series.